

Control
My last emotional blog was about my current state of frustration because sometimes you just need to vent. But today I want to talk about taking control. Feeling bad is something that I am struggling to find answers for and I like to be in control. If the doctor doesn't have a good answer, I'm going to find my own or at least keep trying until I'm forced to give up. I'm not afraid to ask a doctor for something I think might help me. Often they let me try but it doesn't always


I'm Fine
A simple response often masking a complicated answer. The truth is I don't feel fine. You know when you are sick and just feel tired and run down? Some days it is more manageable but the overall feeling of being unwell has progressively increased over the last several years. It can still ebb and flow throughout the day but I've always had more energy in the mornings. There are some things that make it worse such as a urinary tract infection, but often I don't know what's caus


Behind the smile
I've had several people ask me why I stopped blogging and encourage me to start again. It's nice to know people appreciate my writing. As I sit and contemplate why I stopped sharing, many things stand out. I didn't feel inspired. Life was getting harder. My mom. I didn't want to write about my problems anymore. There's a delicate line that's easy to cross between empathy and pity. The first few years of facing disability, I tried to maintain hope and perseverance and I wrote


It's been awhile
If you have followed my journey you know the progressive nature of my illness. I just haven’t had the energy to write lately. Sometimes I...


Is 2020 over yet?
The last 4+ months have been crazy. The last time I got together will all of my friends was at my birthday party in March. Right after...


2020 a year of kindness
As I look back on 2019 I am grateful for many things. I have a blessed life despite the many challenges. I have a great husband. I am...


What I want my daughter to know about breast cancer.
You were 9 years old when I was diagnosed with breast cancer. You watched me endure the pains of chemotherapy, radiation, and surgery. As...


Stem Cells 101: Uses and legal issues in the US
Update: It has been a long summer. I wish I could say I am seeing improvement but unfortunately that is not the case. I am hanging in...


An empty bedroom
As this weekend approaches I contemplate the inevitable empty nest that will soon be our home. Another phase of life is almost complete....


Life. The journey continues.
I continue to be monitored for cancer. My last scan was in early May and I am still cancer free after 3 years and 6 months. Some might...

